AUTISM SUPPORT NETWORK/AUTISM SOCIETY
(YORK REGION CHAPTER)
VOLUME 4; ISSUE
MARCH 18, 2002
EVERYDAY TIPS ON EVERYDAY ISSUES
feel you have to renew your prescription for Prozac every time your child’s
hair starts to get a little shaggy? Do
you need a 5-day spa-vacation after each nail clipping?
Do you avoid car rides, restaurants, malls, in-laws, outlaws, out houses,
etc? Have you tried everything
to ease these
everyday chores, but to no avail? Well
then, this issue is for YOU!
BBB Message Board, we often have people writing in about these subjects, and we
keep discovering what a great resource other parents can be.
I thought it might be helpful to have a reference that you can turn to
when it comes time to visit the barbershop, or give a little ‘manicure’.
such an overwhelming response to this topic that we will present it in three
parts. If you have more tips for
us, please email them in and I’ll put them in an upcoming issue.
tips may seem unconventional, particularly if you have a fairly recent
diagnosis. Please keep in mind we are not endorsing any particular strategy,
just passing along some hints from others.
Also remember some contributors are dealing with adolescents, teenagers
and adults. Never try anything that doesn’t sit right with you or
interferes with your philosophy or ethics.
Never do anything that could potentially harm your child. If in doubt,
contact your physician especially with respect to issues like medications,
supplements (herbals included) and sleep. Remember, we are not physicians the
following is not to be construed as medical advice. Phew!
again, I am in the debt of our wonderful contributors.
Thanks to everyone who helped out! J
TOPICS IN THIS ISSUE COVER:
2. Family Gatherings
3. Going to the Movies
4. Taking Medications
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us at email@example.com
Our children our precious to us. We always substitute their real names for an
initial (unless otherwise requested). Additionally,
we never include last names of contributors (or any personal information)
We are not physicians. Real
parents sent in these contributions. If
you have any trouble opening graphics or have any other questions, please let me
know by email::firstname.lastname@example.org
STAY TUNED: THE NEXT TWO ISSUES WILL COVER EVEN MORE
EVERYDAY TIPS, INCLUDING:
There’s still time to submit your strategies for
upcoming issues. If you have ways of dealing with any of the above issues (or
any not mentioned) please email me.
were all shocked to hear that Floyd Tilton of autism.about.com had recently
passed away. Floyd was a well-known
member of our online communities, dedicating his time to providing support and
information to children with autism and their parents.
at the BBB Autism Support Network had an acquaintance with Floyd; he invited us
to use his chat room several times per week.
He had also reprinted our “How To Enjoy Disney World with Your Child
With ASD” issue of the E-News earlier this year in his about.com newsletter.
News put out the following announcement on March 14, 2002:
Friday morning, Floyd Tilton the editor "guide" of the online
publication Autism.About.com suffered a massive coronary and passed away. He was
was tirelessly dedicated to the Kids and Parents of the Autistic Spectrum
community and will be greatly missed.
mission to create a voice in the Autism Community does not go unnoticed. His
mission & dream can be one step closer as the Autism Spectrum Community
joins together in sending our thoughts and prayers to his beloved wife Adelle and
was the father of an autistic son Aaron and taught Psychology and Human
Development on the community college level for several years before joining
Disability Determination Services as a Training Officer and Disability Examiner.
helped to implement the disability redesign initiatives for Social Security and
served as a training supervisor for Federal Disability Claims Managers. He
taught English and Psychology/Human Development on the college level for 7 years
and was named an Outstanding Instructor by the college. He deals with autism on
a daily basis, having a son who is autistic, and has done extensive research
into this condition.
has attended and taught numerous continuing education programs related to
disabilities and their evaluation by Social Security.
is also survived by his wife Adelle and two daughters, Laura and Grace.
services and funeral were held Wednesday with a Veterans Honor Guard. For those
who would like to send a remembrance, the family has requested donations in lieu
of flowers be sent to:
Chamberlain Funeral Home, W. Highway 20, Chadron NE 69337
keep Floyd and his family in your thoughts and prayers
PREPARED WITH PICTURES, SCHEDULES, DIALOGUE By Cenza
For everything, we use a lot of dialogue, a lot of
pictures and a lot of reinforcing for good behaviour. My husband and I
were so nervous about the first time we took D to a Raptors game. We talked, I
used a social story using PECS, we planned best case scenario to worst case but
we planned the day from the minute we left the driveway from driving, parking,
walking to the ACC (Air Canada Centre), giving the person a ticket, having a
snack, sitting down - etc. It was successful because we were totally
planned and prepared for. Don't laugh - but I even brought a picture
schedule in my purse to prepare her for a toilet break and snack and when it was
time to go. It went without a hitch. It's a lot of freaking
work just to go to a freaking basketball game but I'm not sure we would
have had such success had we not planned so carefully. We did the same
when we went to Marineland, the zoo, Blues Clues and The Wiggles and every time
we go to the movie theatre.
PECS Shorthand Notes:
Communication Made Easy: http://www.bbbautism.com/communicationmadeeasy.htm
Haircut by Lynn
friends who have young children, especially if they are kids with special needs.
I found a kids’ haircutting place by me that is fantastic. It's $10 for a cut
and well worth it. This lady is so accommodating, I know 3 families with ASD
kids who go there. One mom straps her son's car seat into the barber chair, he
screams the whole time but this woman just keeps cutting. Another parent told me
she let her son stand at the Lego table and cut his hair there.
Luckily, I could let the girls grow their hair out because
they were the ones it was truly insane with. Have to admit that fear does get
the best of me sometimes which makes for bangs growing out till they look like
one of those shaggy dogs.
They were real bad when younger, especially when C was sticking her fingers in the scissors... scary!!! Screaming and struggling; a strong pair of loving restraints (daddy a possible suggestion) is great.
Reward afterwards perhaps for those kids that can understand so they can associate haircuts with something special... for the future. Other than that patience and a good sense of humor worked better for me than the opposite.
We use a neighbor who is a professional
stylist. We put JR in her youngest son’s highchair and drape the cover over
him. I massage his head before we start and apply some deep pressure therapy as
well. We put a movie in for him and she goes to town.... we NEVER EVER use
clippers. It's a simple manual cut with regular clippers and it seems to
work well. She does some other special needs kids so she's very good with our
boy and he trusts her cause he "plays" up there with her kids too.
Didn’t Expect Such a Big Response on This, One Question, Though…by Lynn D.
WHAT EVER HAPPENED TO THAT FLOWBEE THING??? LOL
Remember they had infomercials all the time for the thing it was a vacuum and a haircutting tool all in one for an easy haircut that you could do yourself? Not that I would invest money in such a thing...just wondering, that’s all.
Flowbee Online: http://www.flowbee.com/ (Thanks
for the link, Diana!)
I've been going that route of strapping my son down into his high chair. I don't use the tray because he would bang his head onto it repeatedly. I use the clippers for a crew cut, which makes his hair easier to wash I think. He is 4 now and I've been doing it since he was a year old. It's not any easier now than it was then. No matter what I do he gets the hair in his mouth, nose, eyes, etc. He screams so much that his head gets wet with sweat, which makes it harder to work with the clippers. I've tried everything from holding a towel over his face, using a kid's size cape, etc. I think this is something that will always be a problem for him.
have all the family gatherings at my house. That way, the kids know their
boundaries and have all their own toys. The house is childproofed
adequately. The only difference in their environment is that many other
people are there. We don't have luck going to other family members' homes,
but it always goes well at our own house.
By Shirley Sutton B.Sc (OT)
Look for small quiet toys, items that will not disturb
the other children. Most commonly used:
v Stress Balls
v Flour Balloon
v Scrub Brushes
v Mouthing toys
v Bungee cord bracelets
v Stretch toys
v Koosh toys
more ideas can be found on page 177 of “Building Bridges”
Links and an overview of Shirley’s Make
‘n’ Take Workshop can be found here: http://www.bbbautism.com/aso_wkshp_005.htm
AND FAMILY GATHERINGS (Thanks
to Dana for the link!) http://www.autismchannel.net/dana/holiday1.htm
Going to movies By Bernie
* This was a
tough one for us but so far A has seen 2 movies and he did very well.
* We always try to see a movie a few weeks after it debuts that way the movie theatre isn't so crowded.
* We always go to the matinee, it's cheaper and it usually emptier then the later shows.
* Our local movie theatre has been very understanding. The first time we took him to see a movie, Monsters, Inc. we approached management and explained our situation. I explained that I wasn't sure if he would sit thru the entire movie due to his autism. They were kind enough to give us a refund if he didn't. But to our surprise he did!
* We also bring in his favorite snacks from home and juice this avoids time spent on line waiting too.
* We also try to sit in a spot in the movie theatre that I know most folks won't sit at like the very top or last row. That way there aren't too many folks around us and I can let Ariel stand and stretch, and not worry about others.
If you are bringing a sibling, be
sure to have another adult on hand in case you have to leave. Tag-teaming works
for us in many instances, especially restaurants, family gatherings, malls etc.
Whenever my son has to take a pill, I put it in a spoon of
peanut butter and he takes it with no problem. For liquids, he used to take his
cod liver oil in a shot glass with a little juice on top to help cut the taste.
This is not my tip, I got it years ago from my friend, Lisa.
It’s always stayed with me though. If
you can, grind up pills or open a capsule and mix with sprinkles.
Pour on ice cream and serve! One
word of caution, though, check with your pharmacist or physician to see if the
medication remains stable when crushed and mixed. You can also practice by
getting your child to swallow M & M Minis – another tip from years gone
has always had oral sensitivities and getting him to take medication was a big
struggle. He recently had minor
surgery. Historically we've had to
give him Tylenol by suppository, but we had a major breakthrough this time.
I said "either this one goes in your bum, or this one goes in your
mouth". He chose the latter.
Medicine - I know it sounds cruel - but considering it will take 10 seconds and
is necessary I lay D down - cross her hands on her chest - sit on her hands and
chest - administer medicine with a dropper - totally praise her for taking it
and give her something from a basket of dollar store toys I always keep around.
Since she gets her vitamins daily this way - its not too huge a deal now
and I know in my heart she is benefiting from 10 seconds of discomfort. She
actually looks forward to picking a toy from the basket. Come to think of
it - I should open a dollar store myself considering I'm there enough.
the Yahoo Group Enzymes and Autism http://groups.yahoo.com/group/enzymesandautism/
thanks to Dana for providing the link
little guy did not respond well until he reached a point (developmentally) of
not liking the feeling of being soiled in his clothes.
After that, it was much easier because he was motivated to keep his
clothes clean and all I needed to teach him was that there is an alternative-
use the toilet.
STRATEGIES - By
Shirley Sutton B.Sc(OT)
to make this task as pleasant as possible
Habit Training - http://www.bbbautism.com/pdf/article_9_generic_habit_training.pdf
Training by Gary J. Heffner - http://www.bbbautism.com/pdf/article_25_toilet_training.pdf
Potty Training: http://www.angelfire.com/ky/touristinfo/tempertantrum7.html
Structured Teaching Principles to Toilet Training - http://www.teacch.com/toilet.htm
The Autism Society Ontario York Region Chapter would like to
thank IBM Canada Limited for their generous donation of a computer.
is a corporate supporter of the ASO York Region
Halton Chapter to present ABA Training Workshop for Home-Based Programs!
20th & 21st 9:00 a.m. to 5:30 p.m.
This is an intensive 2-day training workshop that will give you the
fundamentals of a home-based ABA program. This
workshop emphasizes a positive and systematic approach to teaching
communication, play, social and self -help skills using Applied Behaviour
Analysis. We will attempt
to teach you how to implement this approach using creativity and flexibility,
capitalizing on the resources available to each individual child and family.
Oakland's Regional Centre, 53 Bond Street, Oakville
- 3rd Floor - Library
Register Early - Limited Enrolment -
The first 30 registrations for each of the above dates will be confirmed
SORRY NO TELEPHONE REGISTRATION
$150.00 per person fee, Lunch included
served. Please submit registration Autism Society /Halton Chapter
173 Lakeshore Road, West, Suite 136
Oakville, Ontario L6K 1E7
Fax: 905 689-2474
YOU LIKE TO SEE THE ABOVE ABA TRAINING WORKSHOP OFFERED BY ASO – YORK?
PLEASE CONTACT mailto:email@example.com.
IF ENOUGH INTEREST IS SHOWN, WE WILL PRESENT! J
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Volume 1; Issue
1 WELCOME ISSUE!
Volume 1; Issue 2 SUMMER CRISIS
Volume 1; Issue 3 SPOUSAL CONCERNS
Volume 1; Issue 4 SENSORY INTEGRATION
Volume 1; Issue 5 CHALLENGING BEHAVIORS
Volume 1; Issue 6 BACK TO SCHOOL
Volume 2; Issue 1 IEP
Volume 2; Issue 2 KEEPING YOUR COOL - WHEN YOUR EMOTIONS ARE ON FIRE
Volume 2; Issue 3 DEALING WITH STRESS
Volume 2; Issue 4 GIFTS FOR THE CHILD WITH ASD
Volume 2; Issue 5 ONE CHILD’S STORY – A TALE OF LOVE AND INTERVENTIONS
Volume 3; Issue 1 SURVIVING THE HOLIDAYS
Volume 3; Issue 2 HOW TO ENJOY DISNEY WORLD
Volume 3; Issue 3 PARENT (AND GRANDPARENT) PIONEERS 2002
Volume 3; Issue 4 EVERYDAY HEROES
Volume 4; Issue 1 DE-MYSTIFYING THE GFCF DIET
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(now available in PDF format).
BBB GUIDES ARE NOW AVAILABLE IN PLAIN TEXT VERSIONS ONLINE AT: http://www.bbbautism.com/bbb_guides_contents.htm
Epsom Salts (expanded version)
Epsom Salts (condensed)
Pros and Cons of telling your ASD child his/her diagnosis
How we advocate for our children
Guide to holidays and large family gatherings
notice to our readers...
founders of this newsletter and the BBB Autism support club are not physicians.
editor reserves the right to make decisions as to whether contributions are
appropriate with respect to content, length, etc. We will not publish offensive material using foul language,
or contributions that are inflammatory or disrespectful to decisions by other
parents (i.e. therapies). We do not generally accept contributions if they are
ads for private service agencies/clinics. We are also unable to accept
contributions after an issue has been completed. We reserve the right to edit
content, but will inform you in advance if we are going to do this. J
Autism - 2002
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