AUTISM SUPPORT NETWORK/AUTISM SOCIETY
(YORK REGION CHAPTER)
FOR AUTISM/PDD - PART ONE
The cause of autism is unknown and thus is open to many
different types of theories ranging from environment toxicity, to viral
infections, and biochemical to developmental imbalances. Seizures and other
co-existing nervous system and digestive system imbalances are common. Some
children with autism do respond to subtle energy interventions and
communications, such as Sensory Integration and augmentative communication.
Some children respond to nutritional interventions and some to behavioral
education. Most seem to benefit from a combination of
It is entirely probable that autism is not caused by a
single agent or can be profiled in the same way, thus the same treatments will
not work for every child or to the same degree.
common thread that seems to run through many successful treatments is
parental/caregiver involvement. Take a look at the therapies listed here and
in the next issue and you’ll see that behavioral, sensory-based and
biological often include the parent administering therapy in some way.
us have heard of (and use) IBI/ABA, Sensory Integration, GFCF diet, DAN!
Protocol and Speech Language Therapy but the idea of this E-News issue is to
provide a brief overview of some of the other therapies out there.
issue, we’ll review even more interventions.
have tried any of these (or any not mentioned), we’d love to hear from you.
A follow-up issue written by parents* about their experiences
with therapies is in the works and contributions are welcomed!
NOTE: Some of these treatments are considered
controversial. Inclusion in this
issue does not constitute endorsement. We
do believe you have a right to know what is out there and with that in mind,
hope you find this latest issue informative. The contents are not to be taken
as medical or professional advice, but to be used as a starting point in your
Also please note that some of the therapy
descriptions have been adapted from websites endorsing said therapy.
Please keep this in mind in your quest for information! J
* The follow-up issue is limited to parent
would like to credit Autism Network Resources for Physicians Website (http://home.san.rr.com/autismnet/treatment.html).
This site helped me with descriptions and links to some of the
lesser-known interventions and is very helpful!
TO AN UPCOMING e-news ISSUE: We
are looking for input on an “all about siblings” issue.
- Have you told your
"NT" child about your ASD child's dx? How old were they at the time?
How did you do it (i.e. straight out, used ASD books etc)?
- If you did opt to tell your NT child (ren), did they ask questions? How do they describe autism to their peers?
- Have you decided to not tell the NT sib(s) about your child (ren's) diagnosis? If so, why? Have they asked questions?
What are your thoughts on this topic in general?
Do You Have a Group of
Parents With Newly Diagnosed Children in Ontario Effected by Waitlists?
Autism’s newest feature is a workshop for this group entitled “How to Help
the Child Newly Diagnosed with ASD/PDD at Home” (Help@Home).
After a successful trial run, We are proud to announce that this
presentation has been honored with positively encouraging feedback and
We discuss issues such as:
Included is a great handout packed with resources,
service, agency and local vendor brochures, ideas, articles and more.
This workshop was designed by the parent of a child with ASD; with
input from hundreds of other families and addresses what the family needs to
know when beginning their journey.
It runs for an entire day or two evening sessions.
Please contact us for pricing and more information. Workshop may be
customized to suit region and audience. To contact us, click the BEE icon
below or email email@example.com.
UPCOMING HELP@HOME WORKSHOPS
Tuesday June 3rd and 4th from 10:00 am to 2:00 pm at the
Loyal True Blue and Orange House, 11181 Yonge Street, Richmond Hill (north of
- or –
June 15th from 9:30 to 5:00pm (same location)
you by Autism Society Ontario York Region Chapter!
for pricing or to ask questions, firstname.lastname@example.org
note: Our children our precious to us. We always substitute their real names
for an initial (unless otherwise requested).
Additionally, we never include last names of contributors (or any
personal information) without permission.
May contain links to other sites. We are not responsible for the contents of
Important messages from Autism Society Ontario and York Region Chapter...
is a wonderful opportunity to participate in an ASO survey on education.
information will be included in ASO's Newslink - but in the meantime please
forward this message onto parents of school-age children with ASD in Ontario -
it will give us a tremendous amount of useful information to assist us in our
awareness & advocacy efforts in the area of education. Thanks to Kathryn
Everest and the York Region ASO chapter for their efforts in pulling this
RESPOND BEFORE JUNE 1st.
delay. Click on this site now!
Pivotal Response Training (PRT)
Temple Grandin’s “Hug Machine”
Higashi (Daily Life Therapy)
Cod Liver Oil
Essential Fatty Acids
Ojibwa Tea of Life
we’ve provided a short description of some autism/PDD interventions here, it
is of utmost importance that you do full research on any therapy you try with
your child. Some of these descriptions are from website selling products, so be
aware there may be a slant there! Be smart, be cautious, ask for input from
doctors, team members, and professionals and be educated.
Also, be aware that some of these therapies are costly.
obtain more information on these interventions and others, search the Internet
by inserting “therapy + autism” into your search engine.
Even if you don’t have Internet access, most public libraries offer
this service for free. This list is, by no means exhaustive.
Information about this popular intervention can be found in the book “The Child With Special Needs” by Stanley Greenspan, MD and Serena Wieder, PH.D. The book provides a comprehensive approach to developmental challenges including autism/pdd and many other related disorders. The authors show how to move beyond labels to observe the unique profile of the individual child. They also discuss how to develop the skills needed to help the child reach key milestones and develop new emotional and intellectual capacities. The Floortime approach helps parents use playful interactions to teach and reach their children.
view of autism (which he prefers to call "multisystem developmental
disorder") is thoroughly developmental. He faults most interventions for
zeroing in on the initial problem area observed during diagnosis -- motor,
sensory, behavioral, language, etc. -- rather than conceiving the child's
challenge in terms of a broad set of developmental processes across all areas.
The Child with Special Needs by Stanley Greenspan, MD and Serena Wieder, PH.D. ISBN: 0-201-40726-4, Addison Wesley Longman About Floortime: http://www.mindspring.com/~dgn/playther.htm
From their website: “The Miller Method®: A Cognitive-Developmental Systems Approach for Children on the Autism Spectrum addresses children's body organization, social interaction, communication and representation issues in both clinical and classroom settings. The Miller Method uses two major strategies to restore typical developmental progressions: One involves the transformation of children's aberrant systems (lining up blocks, driven reactions to stimuli, etc.) into functional behaviors; the other is the systematic and repetitive introduction of developmentally relevant activities involving objects and people. Activities are chosen to fill developmental gaps. This process is facilitated by narrating the children's actions while they are elevated 2.5 feet above the ground on an Elevated Square and similar challenging structures. Elevating the children enhances sign-word guidance of behavior and body-other awareness as well as motor-planning and social-emotional contact. It also helps children transition from one engaging object or event to another or from object involvement to representational play.
play an integral role in the program by generalizing the children's achievements
at the Center to the home and elsewhere.” Miller
Auditory Integration Training (AIT)
method of changing a person's sensitivity to sound at different frequencies. It
was originally developed to combat the onset of some kinds of deafness, but was
tried on an autistic child and cured her. Since then it has not produced any
cures, but has been credited with success in reducing some of the symptoms of
some children. In particular, some autistic children show a strong aversion to
some sounds, and with Auditory Integration Training have lost their aversion and
exhibited other reductions in the symptoms of autism. There are two methods of
AIT, the Tomatis and the Berrard. They are different enough that they should
perhaps be considered different therapies.
Auditory Integration Training: http://www.bbbautism.com/ait.htm
A kind of AIT developed by Alfred Tomatis. Over several weeks, the person listens to classical music with the low frequencies filtered out. Over time, voices (also filtered) are introduced, then the missing frequencies. Treatment requires weeks, typically 2 hours of listening a day. By stimulating the auditory system, and through it, by stimulating the brain, the Tomatis Method has reportedly been able to reduce the autistic symptoms to varying degrees. Each individual with autism is different and may respond differently to the program. In some cases first results were reported within a few weeks, whereas in others it may take longer. Also, progress is never a straight line. There are still good days and bad days. But the trend is often upward, especially when you look back over a period of a few months.
an individual with autism is hypersensitive to sounds, they attempt to treat
this first. When this stumbling block is taken away,
they try to help them to start listening better. It also opens the way to improve sensory integration. These two elements, improved listening skills and better sensory integration, are the building blocks to develop their communication skills.
The Tomatis Method: http://www.tomatis.com/English/index.htm
Integration Training (AIT), an intervention developed in France by Dr. Guy
Berard, addresses the hearing distortions, hyper acute hearing and sensory
processing anomalies which cause discomfort and confusion in learning disabled
and developmentally delayed children. AIT seeks to retrain the auditory system
for those having an impairment of auditory discrimination or abnormal auditory
perception. Introduced to the United States in 1992 through the Georgiana
Institute, AIT has now been given to thousands of individuals with beneficial
results in the areas of educational and behavioral difficulties.
book “The Sound of a Miracle; A Child’s Triumph Over Autism” by Annabel
Stehli details a pioneering mother’s efforts to help her daughter using this
The Sound of a Miracle by Annabel Stehli ISBN: 0964483815, Georgiana Organization Inc
The Georgiana Institute: http://www.georgianainstitute.org/
Samonas Sound Therapy is a processing of therapeutic music that provides direct stimulation to the middle ear, cochlea, auditory nerve and cerebral cortex and indirect stimulation to the entire central nervous system. Samonas Sound Therapy teaches an individual to listen and trains the auditory system so that the full range of sound can be processed without distortion, hypersensitivity or frequency loss. This auditory training aids in the processing of language while eliminating the distractions of ambient sound. The data strongly suggests that this auditory input improves overall neurological function and hemispheric communication, and that it should prove to be beneficial for most who wish to explore its use. Samonas is relatively inexpensive compared to most sound treatments. It is provided in a series of compact disks, which through a specified treatment protocol can be done within the home.
Samonas Sound Therapy: http://www.attachmentcenter.org/articles/article030.htm
Son Rise (Options Institute)
Neil Kaufman's books, Son-Rise (Warner Books, 1976) and Son-Rise: The Miracle
Continues (H.J. Kramer, 1995), documentaries of the grueling process he and his
wife, Samahria Lyte Kaufman, underwent to help their severely autistic son, Raun.
Kaufman literally locked himself in a room with his son for hours on end for
almost three years, observing Raun, following his lead when he could perceive an
initiative, and trying to "bring him back to the world."
Kaufman is grown now, and has graduated from college. The Kaufmans remain heavily involved in the treatment of
autism; however, through the Options Institute in Sheffield, Mass. Satellite
centers have recently opened in Holland and the U.K. Although the Options
program is quite expensive, some parents say it has been helpful.
Its primary principles are unconditional love and acceptance. Options
Irlen Lenses (Vision Therapy)
using colour filters to alter the contrast between the words and the page.
Once the proper colour has been determined through an extensive screen, overlays
of that colour are placed over the page while reading. In many cases,
tinted glasses are recommended, though these can be expensive. Although the
treatment is simple, the results are often very dramatic. The use of the
colour filters will allow a person with Irlen Syndrome to read for long periods
without discomfort. The ability to read for long periods of time and
recognize words quickly is greatly increased, enabling the affected individual
to more effectively practice reading, one of the most important elements in
learning how to read.
Lenses (Vision Therapy):
Nobody, Nowhere (ISBN: 0380722178, Avon Books (Pap Trd)) (Irlen Lenses)
(ISBN: 0812925246, Times Books) both by Donna Williams (Irlen Lenses)
Chelation of Mercury
The use of a chemical called EDTA (ethylene diamine tetraacetic acid) has been used for decades. Probably 700,000 people have benefited by this technique. Chelation therapy, administered by a properly-trained physician and given in conjunction with lifestyle and dietary changes with the use of specialized nutritional supplements, is an option to be seriously considered by persons suffering from coronary artery disease, cerebral vascular disease, brain disorders resulting from circulatory disturbances, generalized atherosclerosis and related ailments which lead to senility and accelerated physical decline. And now, autism.
benefits from chelation therapy vary with the total number of treatments
received and with the severity of the condition being treated. More than 75% of
patients treated have shown significant improvement from chelation therapy. More
than 90% of patients receiving 35 or more treatments have benefited when they
have also corrected dietary exercise and smoking habits, which are known to
aggravate arterial disease. Symptoms improve; blood flow to diseased organs
increases, need for medication decreases, and the quality of life improves.
Chelation of Mercury by Amy S. Holmes, MD: http://www.healing-arts.org/children/holmes.htm
Dimercaptosuccinic Acid (DMSA), A Non-Toxic, Water-Soluble Treatment For Heavy Metal Toxicity by Alan L. Miller, N.D.: http://www.thorne.com/altmedrev/fulltext/dmsa3-3.html
Vitamin B6 and Magnesium
Rimland conducted an experimental study of the use of megavitamin therapy on
autistic children, concentrating on vitamin B6 and magnesium. The double-blind
placebo-controlled crossover experiment utilized 16 autistic children, and
produced statistically significant results.
both studies the children showed a remarkably wide range of benefits from the
vitamin B6. There was better eye contact, less self-stimulatory behavior, more
interest in the world around them, fewer tantrums, more speech, and in general
the children became more normal, although they were not completely cured.
Autism Research Institute article: http://www.autism.org/vitaminb6.html
Kirkman Labs: http://www.kirkmanlabs.com/
Epsom Salts Baths
parents swear that a soak in Epsom Salts helps calm their child with autism down
and promotes a good night’s sleep. The most comprehensive package of
information you can get on this can be obtained by emailing us at email@example.com and requesting the BBB Autism Guide to Epsom salts.
Ask for yours today (no charge applies).
NIDS (neuro-immune dysfunction syndrome, a condition which encompasses Autism,
PDD, Asperger's Syndrome, chronic fatigue syndrome, and ADD/ADHD) Medical
Research Advisory Board
is a group whose mission is to access new therapeutic modalities for NIDS in
children. They believe that these children are suffering from a medical
condition rather than a developmental condition, and have formulated protocols
for physicians and pharmaceutical companies to use in the treatment of NIDS
The proposed protocol includes a series of testing, including lead level, candida titer, allergy food screen, and rubella titer. Course of treatment is based on the test results and patients history, but can include dietary modifications, treatment for immune system, and SSRI's, which increase blood flow to the brain. The testing recommendation can be viewed at Dr. Goldberg's website, which can be done by your own pediatrician or Dr. Goldberg (whose office is in Tarzana, California). Dr. Goldberg’s Website: http://www.neuroimmunedr.com/
Beck took her young son for a routine gastrointestinal test in 1998.
In the days following, her son was suddenly able to do many things he was
previously unable to due to being severely affected by autism. She
tried to establish what could have caused this and discovered the hormone
secretin was used during these tests. A
great deal of publicity followed when in October 1999, Beck appeared on
is a natural substance, produced by all mammals. While it is not a drug, the FDA
nevertheless requires that it be sold only by prescription. Secretin is usually
given by slow injection (infusion), but there are other methods of
administration, which are being considered. The only FDA-approved use for
secretin is in the diagnosis of gastrointestinal problems, not as a treatment
for any disorder.
are very few physicians who have used secretin to treat autistic children and
these physicians do not wish to be identified, because using secretin as a
treatment has not been specifically approved by the FDA, and because these
physicians are concerned that they will not be able to deal with a flood of new
patients. Finding a physician who will infuse secretin is therefore a problem.
Another problem may be the availability of secretin.
reported benefits such as: --eye contact, awareness, sociability, speech, and so
forth. An unexpected benefit, better sleep, was a write-in, mentioned by many
parents but not included among the choices we provided on the SOS form. Several
children began sleeping the night through on the night of the infusion.
hospitals conducted double blind trials of secretin but there has never been any
real encouraging results. Bernard
Rimland and many of the DAN! Practitioners still tout it and many parents
believed it was the ‘magic pill’.
Secretin Links: http://www.usawebworks.com/drgold/links.htm
The term "AVB" is shorthand for a program of
applied behavior analysis that focuses on teaching verbal behavior through a
collection of highly effective teaching procedures taken from the science of
behavior analysis. AVB is IBI, plain and simple. (according to the Christina Burke website). http://www.christinaburkaba.com/index.htm
persons with autism have deficits in social cognition, the ability to think in
ways necessary for appropriate social interaction. For example, theory of mind
describes the difficulty autistic individuals have in assuming the perspective
of another person. This can be addressed by a technique, which is used to help
individuals with autism 'read' and understand social situations. This technique,
called 'Social Stories,' presents appropriate social behaviors in the form of a
story. It was developed by Carol Gray and seeks to include answers to questions
that autistic persons may need to know to interact appropriately with others
(for example, answers to who, what, when, where, and why in social situations).
Social Stories: http://www.udel.edu/bkirby/asperger/socialcarolgray.html
Comic Strip Conversations by Carol Gray, Future Horizons; ISBN: 1885477228
TEACCH Treatment and Education of Autistic and related Communication Handicapped CHildren TEACCH is not a teaching or learning system, but a behavioral management system, which, when properly implemented delivers more predictable behavior and greater cooperation from the TEACCH subject. TEACCH helps the child learn self-care skills and it prepares the child and the family for some degree of lifelong institutional involvement. TEACCH uses structure and modified environment to teach skills, using the affinity for routines and rituals to teach and reinforce. TEACCH: http://www.teacch.com/
Exchange Communication System (PECS)
The Picture Exchange Communication System (PECS) was developed as augmentative/alternative training package that allows nonverbal children and adults with autism and other communication deficits to initiate communication. It was created with educators, residential care providers and families in mind, and so it is readily used in a variety of settings. Verbal prompts are not used, thus building immediate initiation and avoiding prompt dependency. The system goes on to teach discrimination of symbols and then puts them all together in simple "sentences." Children are also taught to comment and answer direct questions.
The Edelson Center for Environmental and Preventative
Autism Treatments: http://www.healing-arts.org/children/autism-treatments.htm
Autism Resources: Methods, Treatments, Programs: http://www.vaporia.com/autism/links-methods.html
Treatments and Therapies: http://www.business.gatech.edu/users/bmiddlebrook/therapies.html
Quackwatch – Questionable Treatments: http://www.quackwatch.com/01QuackeryRelatedTopics/treatmentindex.html
Music Therapy for the Autistic Child by Juliette Alvin, Auriel Warwick, Oxford University
Press; ISBN: 0198162766
assist parents or care givers as they evaluate different treatments, we have
included this list of guidelines created by Dr. B.J. Freeman in her paper Diagnosis
of the Syndrome of Autism: Questions Parents Ask.
Approach any new therapy with hopeful skepticism. Remember the goal of
any treatment should be to help the person with autism become a fully
functioning member of society.
BEWARE of any program or technique that is touted as effective or
desirable for every person with autism.
BEWARE of any program that thwarts individualization and potentially
results in harmful program decisions.
Be aware that any therapy represents one of several options for a person
Be aware that therapy should always depend on individual assessment
information that points to it as an appropriate choice for a particular child.
Be aware that no new therapy should be implemented until its proponents
can specify assessment procedures necessary to determine whether it will be
appropriate for an individual with autism.
aware that debate over use of various techniques are often reduced to
superficial arguments over whom
is right, moral and ethical and who is a true advocate for the children. This can lead to results that are directly
opposite to those intended including impediments to maximizing programs.
that often-new therapies have not been validated scientifically.
It cannot be stressed enough that you must be cautious of therapies that
offer a “cure” or “complete recovery” from autism spectrum disorder.
If the therapy you are looking at is expensive, you need to take a closer
look at it, asking for a breakdown in costs.
POT LUCK SOCIAL
June 10th, 7:00 p.m.
you to hosts Paul and Janet Kalmykow for offering their home again this year. RSVP to Janet at home, 905-473-7648 or <firstname.lastname@example.org>
CALL FOR DIRECTIONS AND TO LET JANET KNOW WHAT FOOD YOU ARE BRINGING!
is pleased to present:
Pukonen, M.H.Sc., S-LP (C), Director of The Speech Foundation of Ontario
May 8th, 2002 7:30 p.m
location: Richmond Hill Public Library, Main Branch - Yonge and Major Mackenzie
(southwest corner) Free Parking - Members: $5.00, Non-Members - $10.00,
Memberships available at the door -- $15.00 per year
will be speaking about the Speech Foundation, the Toronto Children's Centre, and
the programs that are offered. If you have any specific questions you would like
answered, please submit them in advance to email@example.com
FOR LEARNING - A DIRECT INSTRUCTION WORKSHOP
Academy & Learning Centre Presents Johanna Preston Friday May 10, 2002
-- 9:30 a.m. to 3:30 p.m. Toronto - Registration by phone - 416-767-3176 by May 1, 2002. Cost $160.00
for Learning is a comprehensive oral language program that teaches essential
concepts and skills that children need to succeed. Direct Instruction is the
teaching method used. It applies a behaviour approach to instruction and its
curricula. Direct Instruction programs are "scripted" and can be
purchased from SRA publishers (see SRA 4kids.com). Teaching material is provided
at no additional cost due to the generosity of SRA publishing. Workshop is
limited to 15 people. Contact Brookfield at 416-767-3176 or fax at 416-767-3431.
for Learning" provides carefully sequenced lessons to help students.
you will achieve:
Learn common vocabulary as well as language used in textbooks and other
Develop precise knowledge of "little," but important, words such as
first, next, between, who, what, and where
Use different sentence forms, ask and answer questions, and follow instructions
Acquire important information and knowledge, such as days of the week, months,
Learn the logical aspects of language, such as classification and
Learn how to do "Direct Instruction" (DI)
Review the "Language for Learning" Curriculum
Learn about DI design elements and why they are effective
Learn hand signals; correction procedures; problem solving techniques
Practice skills and receive personal feedback from workshop leader
Learn about other DI products from SRA display
cost is $160.00 - payable by Visa/ MC or cheque by May 1, 2002 to Brookfield
Venue - Toronto Preschool Autism Service: Surrey Place Centre located in St.
Lucy's Catholic School at
Clinton Ave, Toronto (north side of College Street - 4 blocks west of Bathurst
Street) on the 2nd floor.
Preston, MA - Child Study and Education; O.C.T. Principal, Lawton Learning
Clinic Senior Consultant, Angus Lloyd Associates, Inc. Johanna has worked for
Angus Lloyd Associates, Inc. for over four years. She currently works as the
principal of the Lawton Learning Clinic, and as senior consultant for Angus
Lloyd Associates, Inc. She has received training in Direct Instruction, both in
specific programs and in how to train teachers to teach Direct Instruction
programs through the Association for Direct Instruction (Eugene, Oregon). She
has trained teachers and education professionals in both public and private
schools across Ontario. She completed her undergraduate degree at the University
of Toronto and her Master of Arts degree in Child Study and Education at the
Ontario Institute for Studies in Education. She is a certified member of the
Ontario College of Teachers.
Presented by Behaviour
Management Services, Mental Health Program of York Central Hospital &
Kerry's Place Community Services Autism Consultants
June 4, 11, 18 & 25,
2002 4-consecutive Tuesday evenings from 7:00-9:00 pm at Loyal True Blue &
Orange Home building, 11181 Yonge Street, Richmond Hill, ON
Please Register early as
space is limited to a first come first serve basis. Cost is $15 per
Register by voicemail:
(905) 780-1590 or return e-mail
The Parent Education Course
is geared to parents whose children are under 12 years of age.
Motivating your child
Setting up situations for success
Effect of your behaviour on your child's behaviour
METABOLIC CONSULTANTS - DAN PROTOCOL
Dr. Cynthia Heavener D.C.
and Dr. Frank Janowicz D.C., Nutritional and Metabolic Consultants For Autism
Spectrum Disorders, Aurora Family Health Clinic
13 Church St., Aurora, ON (905) 727-0119
As parents of a child with
a diagnosis in the autistic spectrum of disorders (ASD), it can be overwhelming
trying to decipher all the therapies and options that are out there. We know
because, as well as being Chiropractors and DAN! practitioners, we are also the
parents of two ASD children.
When our first child, now
11 years old, was about a year old, we noticed that certain foods exacerbated
his symptoms. There our quest began. For the past decade we have been
researching the relationships between diet, biochemistry, and autism. We have
also done laboratory testing in Canada, the U.S. and Europe and, based on that
testing, have implemented dietary changes and supplement regimes. We have found
this approach to be very fruitful with our own sons and with the children we
have worked with. We would like to present this as a pathway you may wish to
In 1995, Dr. Bernard
Rimland, director of the Autism Research Institute, brought together about 30
clinicians and researchers, all of whom had a special interest in autism
spectrum disorders. Their goal was "to accelerate the development and
dissemination of information that will be helpful to many families of autistic
children". The conference was called Defeat Autism Now!, or DAN! From that
meeting, a consensus was formed and the DAN! Protocol was published. The report
outlines several laboratory tests and corresponding treatment options that have
been found to be helpful for children with autism. The report is updated as new
information is discovered. The latest version, entitled, Biochemical Assessment
Options For Children With Autism, is the guide we use in assessing and treating
The key point here is that
we are treating children, not autism. All children are different and the
approach will vary from child to child. Many of our children are not healthy.
They may be pale, have eczema, chronic ear infections, gastrointestinal
disturbances, mercury toxicity, or any number of health problems. Some of them
may have genetically induced biochemical or metabolic abnormalities. Others may
have nutritional deficiencies due to a restricted diet, or an inability to
absorb some nutrients. Identifying the cause of these problems and correcting
them, can often lead to dramatic changes in the symptoms of autism. One simple
example is seen in serum ferritin. Serum ferritin, or blood iron levels, are
often found to be low in children in the autistic spectrum. A recent study
showed that low serum ferritin levels adversely affects neurological
development, even in the absence of anaemia. Any child with developmental issues
should have their serum ferritin checked, and iron supplements should be given
Essential fatty acids are
called essential because they are. They are especially critical in building
brain tissue. In the past several years numerous studies have linked fatty acid
deficiencies or impaired fatty acid metabolism with learning difficulties,
including ADD and autism. This is not surprising because the brain is composed
primarily of lipids (fats). An essential fatty acid test can reveal if your
child is lacking the fatty acids required to build a healthy brain or if there
are problems in how his or her body is metabolising their fats. Supplementation
can greatly improve fatty acid biochemistry.
Allergies are a huge
problem for many children in the autistic spectrum. While some people's
allergic responses are restricted to hives, others may exhibit behavioural
responses. A family history of allergies, or symptoms such as red ears, chronic
ear infections, gastrointestinal disturbances, dark circles under the eyes or
eczema are some of the findings that would prompt us to explore the possibility
of an allergic connection in your child.
In the past few years a
connection has been made between heavy metal toxicity and autism. Symptoms of
mercury toxicity can mimic the symptoms of autism. It is important to test each
child's heavy metal levels. If the levels are high, we need to look at possible
sources of contamination, as well as any impairment the child may have in his
own detoxification systems. A process called chelation is effective in removing
the metals, although it can take some time.
There are many other
assessments, and treatment protocols in the DAN! Protocol. My goal here is to
give you a sampling of what could be happening with your child. I don't mean to
give the impression that there is usually a 'magic bullet' that will cure your
child's autism. Most often it is a long and arduous task of determining which
foods and/or supplements will bring optimum health to your child. Obviously a
child will have the best chance of achieving their potential if they are
The DAN! approach to autism
is an adjunct to other therapies, not a replacement. It addresses the metabolic
and physiological needs of the child. In our experience, it has been
GENEVA CENTRE MOVIE
Geneva Centre for Autism
(http://www.autism.net/) will host our next movie night for individuals with
Asperger Syndrome, and their guests, on Monday evening, May 27th, 2002. The
feature film will be The Lord of the Rings. The Regent Theatre is located at 551
Mount Pleasant, south of Eglinton and north of Davisville Ave. Doors open at
6:30 p.m. and the movie will begin at 7:00. The movie and snack are
Kathy Deschenes, Director
of Fundraising, firstname.lastname@example.org, Geneva Centre for Autism
NEW SOCIAL SKILLS GROUP
ORGANIZING FOR 5 - 7 YR. OLDS.
A new Social Skills group
for 5 - 7 year olds being developed, with a planned start in September 2002.
We are collecting the names of families interested in planning, participation
and further details.
An autism conference is in
the planning stages. Please suggest topics and speakers that are of interest to
Ontario Adult Autism
Resource & Support Network
ONTARIO ADULT AUTISM
NETWORK OAARSN offers a rich and expanding collection of up-to-date information
and communication tools that can put you in touch with others. We can all
benefit from the opportunities for mutual support, encouragement and information
sharing. We especially hope that OAARSN's efforts to draw attention to positive
approaches and best practices in supporting adults with autism can help all who
live and work on the front lines. Click here http://www.ont-autism.uoguelph.ca/newpage4.shtml
GENEVA CENTRE SUMMER
TRAINING INSTITUTE, GENEVA
CENTRE INTERNATIONAL SYMPOSIUM
The Summer Training
Institute is scheduled for August 19-23, 2002 in Toronto. Brochure may be viewed
in PDF format here. http://www.autism.net/
The Geneva Centre
International Symposium is scheduled for October 23, 24, 25, 2002 at the Metro
Toronto Convention Centre. The Symposium 2002 brochure has been mailed out and
is available at here this year you have the option to register on-line; major
discounts for early bird registrations. Also, for the first time, delegates from
around the world can access 8 presentations of the International Symposium 2002
live through the Internet. http://www.autism.net/
BEHAVIOUR - WORKSHOP
The following workshop is
being offered by the Child Development Centre of Oakville: http://www.cdco.com/
Teaching Verbal Behavior:
Hands-on Training for Tutors & Therapists
Presenters: Cherish Richards, BCABA and Holly Smith, BCABA (from Dr. Vincent J. Carbone, Ed.D, Florida, USA)
Dates: June 4 & 5, 2002 or June 6 & 7, 2002
Location: Hilton Garden Inn, 2774 South Sheridan Way, Oakville, Ontario
Prerequisites: Workshop #1 by Dr. Vincent J. Carbone (or equivalent)
Cost: $630.00 Canadian
Participants Limited to 20 participants per session (As May 3, 2002 - only 2 spots available for June 4/5th and approximately 6 spots available for June 6/7th, 2002)
Contact Information: Tracie
Lindblad (905) 849-7993 e-mail: email@example.com, Director, Child Development
Centre of Oakville, President, Four Points Inc. http://www.fourpointsinc.com/
The Autism Society Ontario York Region Chapter would like to
thank IBM Canada Limited for their generous donation of a computer.
is a corporate supporter of the ASO York Region
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Volume 1; Issue 1 WELCOME ISSUE!
Volume 1; Issue 2 SUMMER CRISIS
Volume 1; Issue 3 SPOUSAL CONCERNS
Volume 1; Issue 4 SENSORY INTEGRATION
Volume 1; Issue 5 CHALLENGING BEHAVIORS
Volume 1; Issue 6 BACK TO SCHOOL
Volume 2; Issue 1 IEP
Volume 2; Issue 2 KEEPING YOUR COOL - WHEN YOUR EMOTIONS ARE ON FIRE
Volume 2; Issue 3 DEALING WITH STRESS
Volume 2; Issue 4 GIFTS FOR THE CHILD WITH ASD
Volume 2; Issue 5 ONE CHILD’S STORY – A TALE OF LOVE AND INTERVENTIONS
Volume 3; Issue 1 SURVIVING THE HOLIDAYS
Volume 3; Issue 2 HOW TO ENJOY DISNEY WORLD
Volume 3; Issue 3 PARENT (AND GRANDPARENT) PIONEERS 2002
Volume 3; Issue 4 EVERYDAY HEROES
Volume 4; Issue 1 DE-MYSTIFYING THE GFCF DIET
Volume 4; Issue 2 ACCEPTANCE AND DENIAL
Volume 4; Issue 3 EVERYDAY TIPS (PART ONE)
Volume 4; Issue 4 EVERYDAY TIPS (PART TWO)
Volume 4; Issue 5 EVERYDAY TIPS (PART THREE)
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NOW AVAILABLE IN PLAIN TEXT VERSIONS ONLINE AT: http://www.bbbautism.com/bbb_guides_contents.htm
Epsom Salts (expanded version)
Epsom Salts (condensed)
Pros and Cons of telling your ASD child his/her diagnosis
How we advocate for our children
Guide to holidays and large family gatherings
notice to our readers...
founders of this newsletter and the BBB Autism support club are not physicians.