BBB AUTISM SUPPORT
AUTISM SOCIETY ONTARIO
TIPS ON EVERYDAY ISSUES (Part One)
Do you feel you have to renew your
prescription for Prozac every time your child’s hair starts to get a little
shaggy? Do you need a 5-day
spa-vacation after each nail clipping? Do
you avoid car rides, restaurants, malls, in-laws, outlaws, out houses, etc?
Have you tried everything to ease these everyday chores, but to no
avail? Well then, this issue is for
On the BBB Message Board, we often have
people writing in about these subjects, and we keep discovering what a great
resource other parents can be. I
thought it might be helpful to have a reference that you can turn to when it
comes time to visit the barbershop, or give a little ‘manicure’.
We had such an overwhelming response to this
topic that we will present it in three parts. If you have more tips for us, please email them in and
I’ll put them in an upcoming issue.
Some tips may seem unconventional,
particularly if you have a fairly recent diagnosis. Please keep in mind we are
not endorsing any particular strategy, just passing along some hints from others.
Also remember some contributors are dealing with adolescents, teenagers
and adults. Never try anything that doesn’t sit right with you or interferes with
your philosophy or ethics. Never do
anything that could potentially harm your child. If in doubt, contact your
physician especially with respect to issues like medications, supplements
(herbals included) and sleep. Remember, we are not physicians the following is
not to be construed as medical advice. Phew!
Once again, I am in the debt of our wonderful
contributors. Thanks to everyone
who helped out! J
TOPICS IN THIS ISSUE COVER:
Going to the Movies
Would you prefer a printable version of your subscription? You have a choice between this version, PDF or MSWord (plain text). You can even have more than one subscription in different formats if you wish to print and keep on your computer. Email me with your requests! J email@example.comPlease note: Our children our precious to us. We always substitute their real names for an initial (unless otherwise requested). Additionally, we never include last names of contributors (or any personal information) without permission.
are not physicians. Real parents sent in these contributions.
you have any trouble opening graphics or have any other questions, please
let me know by email: mailto:firstname.lastname@example.org
STAY TUNED: THE NEXT TWO ISSUES WILL
COVER EVEN MORE EVERYDAY TIPS, INCLUDING:
Eating in Restaurants
Sleep (or lack thereof)
Going to the Mall
Safety in and out of the Home
Visiting Doctors and Dentists
Teaching Self Help Skills
There’s still time to submit your strategies for upcoming issues.
If you have ways of dealing with any of the above issues (or any not mentioned)
please email me.
A SAD ANNOUNCEMENT
were all shocked to hear that Floyd Tilton of autism.about.com had recently
passed away. Floyd was a well-known
member of our online communities, dedicating his time to providing support and
information to children with autism and their parents.
at the BBB Autism Support Network had an acquaintance with Floyd; he invited us
to use his chat room several times per week.
He had also reprinted our “How To Enjoy Disney World with Your Child
With ASD” issue of the E-News earlier this year in his about.com newsletter.
News put out the following announcement on March 14, 2002:
This past Friday morning, Floyd Tilton the editor "guide" of the online publication Autism.About.com suffered a massive coronary and passed away. He was only 55.
Floyd was tirelessly dedicated to the Kids and Parents of the Autistic Spectrum community and will be greatly missed.
His mission to create a voice in the Autism Community does not go unnoticed. His mission & dream can be one step closer as the Autism Spectrum Community joins together in sending our thoughts and prayers to his beloved wife Adelle and family.
Floyd was the father of an autistic son Aaron and taught Psychology and Human Development on the community college level for several years before joining Disability Determination Services as a Training Officer and Disability Examiner.
He helped to implement the disability redesign initiatives for Social Security and served as a training supervisor for Federal Disability Claims Managers. He taught English and Psychology/Human Development on the college level for 7 years and was named an Outstanding Instructor by the college. He deals with autism on a daily basis, having a son who is autistic, and has done extensive research into this condition.
He has attended and taught numerous continuing education programs related to disabilities and their evaluation by Social Security.
He is also survived by his wife Adelle and two daughters, Laura and Grace.
Floyd's services and funeral were held Wednesday with a Veterans Honor Guard. For those who would like to send a remembrance, the family has requested donations in lieu of flowers be sent to:
Chamberlain Funeral Home, W. Highway 20, Chadron NE 69337 308-432-3344
keep Floyd and his family in your thoughts and prayers
PREPARED WITH PICTURES, SCHEDULES, DIALOGUE By
everything, we use a lot of dialogue, a lot of pictures and a lot of reinforcing
for good behaviour. My husband and I were so nervous about the first time
we took D to a Raptors game. We talked, I used a social story using PECS, we
planned best case scenario to worst case but we planned the day from the minute
we left the driveway from driving, parking, walking to the ACC (Air Canada
Centre), giving the person a ticket, having a snack, sitting down - etc. It
was successful because we were totally planned and prepared for. Don't
laugh - but I even brought a picture schedule in my purse to prepare her for a
toilet break and snack and when it was time to go. It went without a
hitch. It's a lot of freaking work just to go to a freaking
basketball game but I'm not sure we would have had such success had we not
planned so carefully. We did the same when we went to Marineland, the zoo,
Blues Clues and The Wiggles and every time we go to the movie theatre.
Communication Made Easy: http://www.bbbautism.com/communicationmadeeasy.htm
Haircut by Lynn
Ask your friends who have young children, especially if they are kids with special needs. I found a kids’ haircutting place by me that is fantastic. It's $10 for a cut and well worth it. This lady is so accommodating, I know 3 families with ASD kids who go there. One mom straps her son's car seat into the barber chair, he screams the whole time but this woman just keeps cutting. Another parent told me she let her son stand at the Lego table and cut his hair there.
Luckily, I could let the girls grow their
hair out because they were the ones it was truly insane with. Have to admit that
fear does get the best of me sometimes which makes for bangs growing out till
they look like one of those shaggy dogs.
They were real bad when younger, especially when C was sticking her fingers in the scissors... scary!!! Screaming and struggling; a strong pair of loving restraints (daddy a possible suggestion) is great.
Reward afterwards perhaps for those kids that can understand so they can associate haircuts with something special... for the future. Other than that patience and a good sense of humor worked better for me than the opposite. J
We use a neighbor who is a professional stylist. We put JR in her
youngest son’s highchair and drape the cover over him. I massage his head
before we start and apply some deep pressure therapy as well. We put a movie in
for him and she goes to town.... we NEVER EVER use clippers. It's a simple
manual cut with regular clippers and it seems to work well. She does some
other special needs kids so she's very good with our boy and he trusts her cause
he "plays" up there with her kids too.
Didn’t Expect Such a Big Response on This, One Question, Though…by Lynn D.
HAPPENED TO THAT FLOWBEE THING??? LOL
Remember they had infomercials all the time for the thing it was a vacuum and a haircutting tool all in one for an easy haircut that you could do yourself? Not that I would invest money in such a thing...just wondering, that’s all.
Flowbee Online: http://www.flowbee.com/
(Thanks for the link, Diana!)
I've been going that route of strapping my son down into his high chair. I don't use the tray because he would bang his head onto it repeatedly. I use the clippers for a crew cut, which makes his hair easier to wash I think. He is 4 now and I've been doing it since he was a year old. It's not any easier now than it was then. No matter what I do he gets the hair in his mouth, nose, eyes, etc. He screams so much that his head gets wet with sweat, which makes it harder to work with the clippers. I've tried everything from holding a towel over his face, using a kid's size cape, etc. I think this is something that will always be a problem for him.
have all the family gatherings at my house. That way, the kids know their
boundaries and have all their own toys. The house is childproofed
adequately. The only difference in their environment is that many other
people are there. We don't have luck going to other family members' homes,
but it always goes well at our own house.
Baskets By Shirley Sutton B.Sc (OT)
for small quiet toys, items that will not disturb the other children. Most
… more ideas can
be found on page 177 of “Building Bridges”
Links and an overview of Shirley’s Make ‘n’ Take Workshop can be found here
AUTISM AND FAMILY GATHERINGS (Thanks to Dana for the link!)
* This was a
tough one for us but so far A has seen 2 movies and he did very well.
* We always try to see a movie a few weeks after it debuts that way the movie theatre isn't so crowded.
* We always go to the matinee, it's cheaper and it usually emptier then the later shows.
* Our local movie theatre has been very understanding. The first time we took him to see a movie, Monsters, Inc. we approached management and explained our situation. I explained that I wasn't sure if he would sit thru the entire movie due to his autism. They were kind enough to give us a refund if he didn't. But to our surprise he did!
* We also bring in his favorite snacks from home and juice this avoids time spent on line waiting too.
* We also try to sit in a spot in the movie theatre that I know most folks won't sit at like the very top or last row. That way there aren't too many folks around us and I can let Ariel stand and stretch, and not worry about others.
If you are bringing a sibling, be
sure to have another adult on hand in case you have to leave. Tag-teaming works
for us in many instances, especially restaurants, family gatherings, malls etc.
Whenever my son has to take a pill, I put it in a spoon of peanut butter and he takes it with no problem. For liquids, he used to take his cod liver oil in a shot glass with a little juice on top to help cut the taste.
This is not my tip, I got it years ago from my friend, Lisa.
It’s always stayed with me though. If
you can, grind up pills or open a capsule and mix with sprinkles.
Pour on ice cream and serve! One
word of caution, though, check with your pharmacist or physician to see if the
medication remains stable when crushed and mixed. You can also practice by
getting your child to swallow M & M Minis – another tip from years gone
has always had oral sensitivities and getting him to take medication was a big
struggle. He recently had minor
surgery. Historically we've had to
give him Tylenol by suppository, but we had a major
breakthrough this time. I said
"either this one goes in your bum, or this one goes in your mouth". He chose the latter. J
Medicine - I know it sounds cruel - but considering it will take 10 seconds and
is necessary I lay D down - cross her hands on her chest - sit on her hands and
chest - administer medicine with a dropper - totally praise her for taking it
and give her something from a basket of dollar store toys I always keep around.
Since she gets her vitamins daily this way - its not too huge a deal now
and I know in my heart she is benefiting from 10 seconds of discomfort. She
actually looks forward to picking a toy from the basket. Come to think of
it - I should open a dollar store myself considering I'm there enough.
the Yahoo Group Enzymes and Autism http://groups.yahoo.com/group/enzymesandautism/
thanks to Dana for providing the link
little guy did not respond well until he reached a point (developmentally) of
not liking the feeling of being soiled in his clothes.
After that, it was much easier because he was motivated to keep his
clothes clean and all I needed to teach him was that there is an alternative-
use the toilet.
STRATEGIES - By Shirley Sutton B.Sc(OT)
STRATEGIES - By Shirley Sutton B.Sc(OT)
Toilet Training by Gary J. Heffner
PARENT EMPOWERMENT WORKSHOPS
Registration Required, Limited Enrolment. Email
email@example.com Location: 11181 Yonge Street, Richmond Hill
Sexuality ~ Deanna Pietramala, Leaps & Bounds TUESDAY, APRIL 9, 2002
Skills ~ Deanna Pietramala, Leaps & Bounds TUESDAY APRIL 23, 2002
Discipline & The Exceptional Student
~ Lindsay Moir TUESDAY, MAY 7, 2002
1Behavior Management ~ Deanna Pietramala, Leaps & Bounds TUESDAY, JUNE 4, 2002
Learning Centre is proud to present “Understanding Applied Behaviour Analysis:
Practical Applications for Autism” on Friday, April 5, 2002, 9:00 a.m. to 5:00
p.m., at Manulife Financial (200 Bloor Street East, Toronto).
REGISTRATION BEGINS FEBRUARY 25, 2002!
Speakers and topics include:
CAMERON, Canadian Journalist - Opening Address
DAVID CELIBERTI (keynote speaker), Director of Training & Research at Eden
II programs in Staten Island, New York - ABA:
it is, what it isn’t, and what it implies for educating children with autism
DAVID CELIBERTI (keynote speaker), Director of Training & Research at Eden
II programs in Staten Island, New York – What about me? Understanding and
addressing the needs of siblings.
GERENSER, Executive Director of Eden II programs in Staten Island, New York - Enhancing
language in children with autism
HOROWITZ, Director of Education Services at Eden II’s Genesis School in
Plainview, New York - Doctors,
Dentists, and Haircuts: applying behavioural teaching techniques in real life
LEN LEVIN (formerly from Alpine Centre, New York) & DR. SYLVIE DONAIS,
Kinark Family Services (Central East Preschool Autism Services) - Behaviour
management: decreasing challenging behaviour, increasing appropriate behaviour
MEISSNER, Program Director at New Haven Learning Centre - The “how
to’s” of ABA: top 10 strategies for parents and professionals to use today
BECKY WARD, Clinical Research Coordinator for the Autism Spectrum Disorders –
Canadian-American Research Consortium - Unraveling the mystery of autism:
from genetics to early detection and prevention
pre-register to attend. PARENTS/STUDENTS:
$150.00, PROFESSIONALS: $190.00
Registration deadline: March 22, 2002 (A cancellation fee will apply)
For more information, or to register, contact New Haven at 416.259.4445
416.259.2023 or email at NHLearning@aol.com
The Autism Society Ontario York Region
Chapter would like to thank IBM Canada Limited
for their generous donation of a computer.
IBM is a
corporate supporter of the ASO York Region
ASO Halton Chapter to present ABA Training Workshop for
20th & 21st 9:00 a.m. to 5:30 p.m.
an intensive 2-day training workshop that will give you the fundamentals of a
home-based ABA program. This
workshop emphasizes a positive and systematic approach to teaching
communication, play, social and self -help skills using Applied Behaviour
We will attempt to teach you how to implement this approach using
creativity and flexibility, capitalizing on the resources available to each
individual child and family.
Regional Centre, 53 Bond Street, Oakville -
3rd Floor - Library
- Limited Enrolment - The first 30
registrations for each of the above dates will be confirmed by telephone
per person fee, Lunch included served.
Please submit registration Autism Society /Halton Chapter
Road, West, Suite 136
Ontario L6K 1E7
YOU LIKE TO SEE THE ABOVE ABA TRAINING WORKSHOP OFFERED BY ASO – YORK? PLEASE CONTACT mailto:firstname.lastname@example.org.
IF ENOUGH INTEREST IS SHOWN, WE WILL PRESENT! J
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(C) 2002 BBB Autism
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Volume 1; Issue
1 WELCOME ISSUE!
Volume 1; Issue 2 SUMMER CRISIS
Volume 1; Issue 3 SPOUSAL CONCERNS
Volume 1; Issue 4 SENSORY INTEGRATION
Volume 1; Issue 5 CHALLENGING BEHAVIORS
Volume 1; Issue 6 BACK TO SCHOOL
Volume 2; Issue 1 IEP
Volume 2; Issue 2 KEEPING YOUR COOL - WHEN YOUR EMOTIONS ARE ON FIRE
Volume 2; Issue 3 DEALING WITH STRESS
Volume 2; Issue 4 GIFTS FOR THE CHILD WITH ASD
Volume 2; Issue 5 ONE CHILD’S STORY – A TALE OF LOVE AND INTERVENTIONS
Volume 3; Issue 1 SURVIVING THE HOLIDAYS
Volume 3; Issue 2 HOW TO ENJOY DISNEY WORLD
Volume 3; Issue 3 PARENT (AND GRANDPARENT) PIONEERS 2002
Volume 3; Issue 4 EVERYDAY HEROES
Volume 4; Issue 1 DE-MYSTIFYING THE GFCF DIET
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Epsom Salts (expanded version)
Epsom Salts (condensed)
Pros and Cons of telling your ASD child his/her diagnosis
How we advocate for our children
6. Guide to holidays and large family gatherings
notice to our readers...
founders of this newsletter and the BBB Autism support club are not physicians.
editor reserves the right to make decisions as to whether contributions are
appropriate with respect to content, length, etc. We will not publish offensive material using foul language,
or contributions that are inflammatory or disrespectful to decisions by other
parents (i.e. therapies). We do not generally accept contributions if they are
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contributions after an issue has been completed. We reserve the right to edit
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Autism - 2002
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